Any adult who is faced with the prospect of ileostomy surgery wants to know how it is going to affect their sex life. But it’s not always easy to ask your doctor, and sometimes there’s no one else to ask. I had intended to write a tell-all about sex, and then I remembered that both my parents read my blog, not to mention my mom’s boss! So, I find that I feel more reserved than I normally am. If any of my sister ostomates or sister soon-to-be ostomates would like to have a direct conversation with me on the subject, please let me know and I’d be happy to contact you by email or phone and discuss details. But I would like to say a few general things here, with the caveat that my experience is mine and may or may not be the same as anyone else’s.
Yes, you can have sex after having an ostomy. In my case, it took almost three months of healing before I could comfortably have sex, but after that it was no problem. If you are considering having ostomy surgery for crohn’s or ulcerative colitis, you are probably very sick, which means that you probably aren’t leading a very sexually active life right now. I found that sex post-surgery happens more frequently and is more satisfying than it was when I was sick. How the presence of the pouch affects you and your partner largely depends on you and your relationship. I was very lucky in that not only was I married, but my husband is entirely unconcerned with the pouch. I honestly can’t say what it would be like to be dating people and having to discuss this with potential partners and worrying how they would react. I imagine it’s tough, and since I haven’t had that experience I really can’t speak to it.
I prefer to use a two-piece pouching system, which allows me to swap out my larger pouch for a smaller one whenever I want to. Honestly, I’m too lazy to do this very often, but every once in a while I will put on a smaller, closed pouch. I also really love my heart tie and my hip-T (see links on my blog) for intimacy. Obviously these are for the girls, not the boys. The heart tie is designed for this. The hip-T is not, but I find that it’s comfortable and sexy to wear it by itself, especially over a mid or small sized pouch.
This is one of those things where you’ll figure out what works for you, and you’ll figure it out very quickly. But I know that before you have the surgery, you really don’t know what you’re getting into, and so I just wanted to communicate that at least for me, my sex life is great post-op, and a huge improvement over what it was like as a sick person.
(Recently I wrote more about ostomy & sex, because gosh, this seems like something my readers are very interested in
: Here’s the link – More On Sex )
Hi Emily, I also have a permanent ileostomy which I had for Ulcerative Colitis, I am now coming up for my 7th year of being well, after having suffered for 10 years, and life with my Stoma is fantastic. I managed to get a job 6 months after my surgery, something I had not been well enough to do in a long time. Something else I am now able to do is travel, I’ve been to South America and India, and even rode on an elephant! As for the sex issue, I too find that sex is much better now, I think it’s partly down to feeling more relaxed, and also the fact that maybe the muscles in that area had probably suffered over the years. Have you had to change your pouch anywhere strange or unusual yet? I once had to change mine in the toilet of a glass bottom boat at sea in a space about two foot wide, that was a challenge! Hope you continue to be well, and carry on living life to the full. Jan xxx
By: Jan Sugrue on May 11, 2009
at 3:26 pm
You definitely beat me on unusual places to change your pouch! I think the most unusual place for me has been out in the woods when I’ve been camping. Glad to hear that you’re seven years into it and still happy!
By: lifewithapouch on May 11, 2009
at 3:36 pm
Both my parents have bowel cancer … mum has a stoma and dad an illeostomy. I have recently met a delightful gentleman who has a colostomy following surgery 6 years ago. He is a bit shy about proceeding further, so to speak, and i am a bit unsure as to how these things work on both a practical level. It is clear from his perspective that it is psychological issue, but does it make a difference? Surely not between 2 people that care for each other?
By: Vicky on October 4, 2011
at 10:13 am
I can’t speak for him. It doesn’t feel very sexy to have a pouch, and I can imagine feeling shy about a new partner seeing me so exposed. Physically, it is not an issue. Love & patience.
By: Emily York on November 6, 2011
at 11:04 pm
Hi Emily,
I have been getting to know a man for the last few months and have been wondering why things were moving so slowly. He told me about his illeostomy tonight. When he left I “Googled” it and that’s how I ran into your site.
Thank you for sharing this, for your honestly, and openness. Paul is a great guy and I’m looking forward to a wonderful relationsip with him. I can’t even imagine how difficult it must have been for him to tell me about this. Thank you for your posts and for educating me and the countless others who don’t comment to let you kow the difference that you’re making.
You rock!
Lisa
By: Lisa on April 15, 2012
at 9:23 pm
Thanks, Lisa! Good luck!
By: Emily York on May 14, 2012
at 11:12 pm