In the first few months after ileostomy surgery, I was rather flabbergasted at how grotesque my body seemed. No amount of education materials had really prepared me to look down and see this big pouch next to a big red scar. Between that and being bloated from surgery, and obsessing with whether I was taking care of it right, and nearly passing out at the terrible smell of the output (something I experienced only in the first couple of weeks, which I attributed to toxins), I was fairly overcome with the notion that my body had become ugly.
Well, no more. Let’s just talk about the pouch itself to begin with. They send you home with the ugliest, biggest translucent pouch they can find, and this does little for your initial feeling about the subject. But I found that once I changed to an opaque pouch that was sized better for my body, the pouch itself isn’t terrible. I will never say my pouch is beautiful, but here’s the thing: Saying that my body is ugly because there is an unattractive pouch, is like focusing on my nostril and deciding my body is ugly because I’ve got hairy nostrils with boogers inside. Pouch does not equal body, and body does not equal pouch. A person wearing an ankle brace doesn’t become ugly, or a person wearing glasses, or even a person with a zit on her chin. It is natural to be obsessed with the pouch because this is the thing that has changed on your body, and because it demands so much attention in general. But I promise you, when you walk through your bedroom naked, your significant other is not likely to be focusing on your pouch.
Now, setting the pouch aside for a sec, there’s the rest of my body. In my opinion, nothing is more beautiful than health. I can tell you what was not beautiful – when I weighed ninety pounds, and my bones were sticking out, and my skin was pale and thin and bluish, and it was dry and cracked and bleeding – even my nipples were peeling and cracked, and my butt was nonexistent, and my breasts were just two little saggy pouches of skin, and my hair was graying and thinning, and I looked like a war victim. Not to mention the perianal disease. Okay, to mention it. But I’ll just mention it and refrain from further detail.
When I look in the mirror now, I see someone who is vibrant, alive. I have muscles and curves! I have color! And I have a smile that emanates from my innermost being, and that is perhaps the most beautiful part of all.
You literally just typed everything I went through back in December. Brought tears to my eyes. THANK YOU!!!!!!!!
By: Lentil on May 6, 2009
at 9:28 pm
I am having the surgery on Tuesday. I was browsing the net looking for a reason to cancel it, because I just have not been able to prepare myself emotionally. But now after reading these blogs I think I just may have the courage to go through with it. Thank you so much.
By: Imagine on May 21, 2009
at 8:28 am
I am wishing you the best of luck! For me, it was the best decision I ever made, and I so hope you will come to feel the same way. You might check out my very first post, “Hello, Fellow Ostomates,” (http://lifewithapouch.wordpress.com/2009/03/14/hello-fellow-ostomates/) to read more about how I was feeling on the day of surgery, which is a very difficult day. Also, I think a lot of people can relate to what I wrote in “The Two Month Mark” (http://lifewithapouch.wordpress.com/2009/04/01/the-two-month-mark/) – essentially the first two months after surgery are extremely difficult emotionally and otherwise, and after that life becomes awesome again. Feel free to email me directly if you want to talk more about it. -Emily
By: lifewithapouch on May 21, 2009
at 8:42 am
I found your blog entries while I was searching for more information about UC. My boyfriend has colitis and I am always trying to understand how it feels and how it affects his life so I can be more supportive. Anyway, your entries are really honest and touching and I just wanted to thank you for sharing them.
Paula
By: Paula on June 6, 2009
at 1:54 pm
I’m so glad my writing was helpful to you. In going through this disease, there was nothing I treasured more than having a supportive partner. I know that in some ways it was as difficult for my husband as it was for me. Best of luck to both of you.
-Emily
By: lifewithapouch on June 6, 2009
at 6:00 pm
This blog is AWESOME! I was just looking for some ostomy products and happened upon it.
I got my ileostomy in 1995 (Crohn’s), and within 10 days I was eating CORN ON THE COB, and STRAWBERRIES, which formerly would’ve sent me to the bathroom for days. That right there validated what had been a lifesaving but not happily-anticipated surgery.
Imagine, good luck!
And thanks, Emily – you are adorable.
By: Cattypex on June 12, 2009
at 11:57 am
Yjese are wise and true words
By: Arkayeff on February 28, 2010
at 1:03 am
“These” I meant
By: Arkayeff on February 28, 2010
at 1:03 am