This morning is cold, gray, and rainy, and I am cozy in my office with some toasted homemade wheat banana currant bread (thanks to a dear friend) and a cup of coffee in my favorite mug. I have already changed my pouch this morning, and I am pleased that it was an easy morning – my stoma was absolutely quiet, so no messes, no juggling between trying to get that barrier ring on and catching output at the same time – and it is always a peaceful feeling to have that behind me, knowing that I shouldn’t have to worry about it again for a few days.
Since I have no kids, I am only really cognizant of the beginning of the school year the first day that real fall weather kicks in, and in Denver that day is today. Each year, around this time, on the first cold rain, I get a little nostalgic for that boisterous happy schoolgirl that I was, so terribly excited to go to school and wear my new school clothes and, more than anything, to wear my bright yellow plastic rain boots. I don’t know what it was about those yellow rain boots with their fur lining (too warm for most California winters) and two easy buckles. But I think it was that I delighted in the fact that they were specialty shoes, a luxury, shoes that were reserved just for the special occasion of a rain day (and I think California was in a drought for just about all of my elementary school days, so it was truly a special occasion). My family had little money to spare, and I can only imagine that my mom resolved to work a couple of extra hours at the Egg & I, or go heavy on the lentils one week in order to pay for them.
But when I visit that little Emily in my mind’s eye, I can’t help but to wonder at the fact that that little girl was heading swiftly and directly into the swamps of disease. And her little yellow rain boots would be no match for that.
I found your blog a couple of weeks ago and have read it all since. You’re brave. You’re inspiring.
I’m due to have surgery for UC (having the 1st appointment with the surgeon on thursday 24th), I’m positive about it but I’m very very ansious. It’s just hard to imagine how it is going to be like after surgery. I know I’ll probably feel much better but I don’t know if I remember how it is to feel good just like before UC.
Anyway, thank you for sharing your ‘life with a pouch’. It has been really helpful. I hope you keep smiling every day and doing everything that makes you happy
Tânia
By: Tânia on September 21, 2009
at 8:19 am
Thanks, Tania. I know that by the time I had surgery, I certainly couldn’t remember what it felt like to feel really good and healthy, and when you can’t even remember what “good” is, it’s hard to imagine how this surgery could really be such a positive change. But I think and hope that once you heal from the surgery, you will be in for an exhilarating and joyful reacquaintance with a full life! Good luck! And thanks for letting me know – it always makes me feel good to hear that something I’ve written has inspired someone.
By: lifewithapouch on September 21, 2009
at 8:44 am
I love this blog … Gone through every posting to date and finally just rely on the rss feed to keep me up to date. As I prep for ileostomy surgery due to UC I will probably read it all over again! I’m particularly fascinated by your introspective psych. Growth and realizations as you go ahead with this journey in life. Keep up the great writing!!
By: steven on September 21, 2009
at 10:56 pm
Thank you so much, Steven. This really means a lot to me. Good luck with your surgery!
By: lifewithapouch on September 22, 2009
at 6:13 am